We want everyone to be aware of Fabry disease!
Join us in spreading awareness about our rare disease. Education and awareness are critical to increase the recognition, diagnosis, understanding and management of Fabry disease. Fabry disease remains a severely underdiagnosed, misdiagnosed, and often misunderstood condition.
The Fabry disease community celebrates Fabry Disease Awareness Month in the U.S. and in a few other countries in April each year. In the U.S. the National Fabry Disease Foundation and the Fabry Support & Information group (FSIG) work with Fabry community members in each state to obtain as many official state governors’ proclamations as possible. We recognize Fabry disease awareness in April in every state but not every state has an official program or some states will only grant a week or a day. Each year you can see photos of governor's proclamations and a map of our progress at www.facebook.com/FabryDisease.