We want everyone to be aware of Fabry disease!

Join us in spreading awareness about our rare disease. Education and awareness are critical to increase the recognition, diagnosis, understanding and management of Fabry disease. Fabry disease remains a severely underdiagnosed, misdiagnosed, and often misunderstood condition. 

The Fabry disease community celebrates Fabry Disease Awareness Month in the U.S. and in a few other countries in April each year. In the U.S. the National Fabry Disease Foundation and the Fabry Support & Information group (FSIG) work with Fabry community members in each state to obtain as many official state governors’ proclamations as possible. We recognize Fabry disease awareness in April in every state but not every state has an official program or some states will only grant a week or a day. Each year you can see photos of governor's proclamations and a map of our progress at www.facebook.com/FabryDisease.

In 2016, to celebrate, we are taking the opportunity to unveil several new resources including this new version of our website, our new "My Health Handbook and Emergency Information" booklet, our new "The Fabry Community Landscape" handout, an updated NFDF Program Handout, the Fabry community's new awareness ribbon, and more. The handouts are located in the Featured Resources section of the website. The booklet can be obtained by contacting Jerry at This email address is being protected from spambots. You need JavaScript enabled to view it..

What can you do to help increase awareness? It takes a village!

We Need Your Help

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  


Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference.

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