We go to a very special place each September where we hold our annual Fabry Family Education Conference followed by our annual Charles Kleinschmidt Fabry Family Camp. We bring everyone to Greensboro, NC as early as we can on Thursday for more informal conference activities, then a full day of educational presentations on Friday. At about 5:00 pm on Friday, we transport everyone to nearby Victory Junction for the weekend camp. It's awesome! 

See more details about these events and to obtain the camp forms you need on our website in the "Upcoming Events Section". Look at the July 1 calendar item and the Conference and Camp calendar items. They will prepare you for submitting applications. 

Criteria to attend: If you have at least one child with Fabry disease that is 6 to 16 years old, you are eligible to bring your entire immediate family to our expense-free family conference (Thursday and Friday day-time) and annual Charles Kleinschmidt Fabry Family Weekend Camp (Friday late afternoon to noon Sunday).

We provide transportation from around the country to the conference and camp as well as conference hotel lodging and meals. We provide transportation from the conference to Victory Junction and back to the airport on Sunday. We contract with Victory Junction to provide lodging, meals, snacks, and loads of fun at camp. Travel to North Carolina is on Thursday for most participants.

If you plan to submit an application to attend this year's camp, please email Jerry at This email address is being protected from spambots. You need JavaScript enabled to view it. as soon as possible to let us know for planning purposes. Please see more details about our camp in the Fabry Family Weekend Camp section near the bottom of the homepage and visit the Victory Junction website at www.victoryjunction.com to learn more about the camp's wonderful facilities and activities.

We also need volunteers to support our camp. Family and friends, clinic staff and industry staff are welcome and encouraged to apply. It is a great experience! Please submit volunteer applications as soon as possible beginning July 1. Volunteers can also find more details at the July 1 calendar entry in the Upcoming Events section of the website. 

If you have questions, please contact Jerry at This email address is being protected from spambots. You need JavaScript enabled to view it. or 800-651-9131.

Please share this information with your friends and family!

We Need Your Help

As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  

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Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference.

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