The National Fabry Disease Foundation (NFDF) strives to offer programs and administer projects that are helpful to the individuals with Fabry disease and our families as well as to facilitate support and assistance among our many providers and supporters.
Our many programs include:
Our Recognize And Rescue Everyone campaign is the NFDF's umbrella campaign to educate physicians and familes to increase worldwide recognition and diagnoses of Fabry disease. There is overwhelming evidence to include newborn screening studies in Italy, Taiwan and Austria indicating the popualation of individuals with Fabry disease far exceeds currently published estimates. Because there are so many symptoms that could lead to recognition and diagnosis of Fabry disease and we are one of the few rare diseases with approved treatment available we have a R.A.R.E. opportunity to Recognize And Rescue Everyone.
Within this campaign we have developed a series of specific programs to increase recognition of Fabry disease.