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Tuesday, 15 May 2012 07:33

Programs & Projects

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The National Fabry Disease Foundation (NFDF) strives to offer programs and administer projects that are helpful to the individuals with Fabry disease and our families as well as to facilitate support and assistance among our many providers and supporters.

Our many programs include:

Our Recognize And Rescue Everyone campaign is the NFDF's umbrella campaign to educate physicians and familes to increase worldwide recognition and diagnoses of Fabry disease. There is overwhelming evidence to include newborn screening studies in Italy, Taiwan and Austria indicating the popualation of individuals with Fabry disease far exceeds currently published estimates. Because there are so many symptoms that could lead to recognition and diagnosis of Fabry disease and we are one of the few rare diseases with approved treatment available we have a R.A.R.E. opportunity to Recognize And Rescue Everyone.

Within this campaign we have developed a series of specific programs to increase recognition of Fabry disease.

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  • As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  

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  • Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference. Read more about ways to support people with Fabry disease.

Do You Have Questions?

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Visit our Frequently Asked Questions page to read about common questions related to Fabry disease.

Join the Fight

Join the fight against Fabry disease! Make your voice count to create positive change for people with Fabry disease and our families.

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Founder's Corner

Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012.  Founder and President, Jerry Walter

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Visit Jerry's Blog Today!