About NFDF In addition to the National Fabry Disease Foundation, there are many organizations in the U.S. and around the world supporting the Fabry community. Their respective focus areas range from supporting Fabry disease only (NFDF, FSIG and FIN) to including Fabry disease among other Lysosomal Storage Disorders (Lysosomal Disease Network and the Hide and Seek Foundation) to rare or genetic disorders overall (NORD, Genetic Alliance, the EveryLife Foundation and others),
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Thursday, May 23, 2013
Thursday, 24 May 2012 02:05
Other Fabry Disease Community Support Organizations
Written by Jerry Walter-
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Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012. Founder and President, Jerry Walter
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Contact Information
National Fabry Disease Foundation
4301 Connecticut Ave. N.W.
Suite 404
Washington DC 20008
NFDF NC Office
1913 Village Crossing Drive
Chapel Hill, NC 27517