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Thursday, 24 May 2012 02:05

Other Fabry Disease Community Support Organizations

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In addition to the National Fabry Disease Foundation, there are many organizations in the U.S. and around the world supporting the Fabry community. Their respective focus areas range from supporting Fabry disease only (NFDF, FSIG and FIN) to including Fabry disease among other Lysosomal Storage Disorders (Lysosomal Disease Network and the Hide and Seek Foundation) to rare or genetic disorders overall (NORD, Genetic Alliance, the EveryLife Foundation and others),

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Wow, the last 10 years went by quickly! In June the National Fabry Disease Foundation will celebrate its 10 year anniversary. We are very proud of what we have accomplished but still have a long, arduous journey ahead of us. There is still so much to be accomplished. I remain very fortunate and proud to serve the Fabry community. March 2015.  Founder and President, Jerry Walter


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