Monday, April 21, 2014

Jerry's Fabry Disease Blog

Keeping the Fabry community informed

Jerry's Fabry Disease Blog

Jerry's Fabry Disease Blog was created to spread awareness about Fabry disease, a rare genetic disorder, and to share news and information about what is happening in the Fabry community. The blog is one component of the National Fabry Disease Foundation's social networking program.

21
November
2012

When should children get treatment for Fabry Disease?

Jerry’s Fabry disease blog should probably be renamed Jerry’s Air Time. Here I am again on a flight from Boston to Raleigh-Durham anxious to get home after a long day. In the meantime I have a couple of hours to write. The topic for today is when to start treatment. Many parents want to know [...]

Written by: Jerry Walter Categories: Treatment

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  • As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  

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Visit our Frequently Asked Questions page to read about common questions related to Fabry disease.

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Join the fight against Fabry disease! Make your voice count to create positive change for people with Fabry disease and our families.

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Founder's Corner

Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012.  Founder and President, Jerry Walter

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