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Dani Goes to Fabry Family Camp

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Dani goes to Fabry family camp... by Dawn Laney with illustrator Michael Johnson.


 
We are very pleased to announce two new educational books for pre-teens and teens with Fabry disease.
 
Dawn Laney, Genetic Counselor/Research Coordinator and all around Fabry community champion from the Emory University School of Medicine's Lysosomal Storage Disease Center recently wrote another great book ... Dani Goes to Fabry Family Camp. Dawn did a great job with the content and Mike Johnson, who has Fabry disease, did a great job with the illustrations. Thank you both for this wonderful contribution to Fabry disease education. 
 
We are especially excited about Dani Goes to Fabry Family Camp because the story is based on the National Fabry Disease Foundation's annual Charles Kleinschmidt  Fabry Family Weekend Camp at Victory Junction. In September we'll host our 5th annual camp and 4th annual Fabry family conference. Dawn, along with many other wonderful Fabry community supporters, is a volunteer family crew chief at our weekend camp.   
 
This book can be purchased at Amazon.com at:  http://www.amazon.com/Dani-Goes-Fabry-Family-Camp/dp/1492887641

 

Last modified on Thursday, 06 February 2014 09:34
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