Get ready Fabry community! We are going to one of the best places on earth again in September 2013! Our camp dates are 20-22 September, 2013. Our annual family conference will be held on Friday before camp with travel on Thursday.
If you have at least one child with Fabry disease that is 6 to 16 years old, you are eligible to bring your entire immediate family to our family conference (Friday day-time) and our annual Charles Kleinschmidt Fabry Family Weekend Camp (Friday at 5:30 PM to noon Sunday).
We provide transportation from around the country. Victory Junction provides lodging, meals, snacks, and loads of fun. Travel to North Carolina is on Thursday for most participants.
Family applications may be submitted beginning July 1, 2013. The application process has a few steps and we need to buy airline tickets as early as possible after your application is approved. Please start prepartion for your application early to ensure all medical documentation requirements can be completed by the submission date. It is best to review camp immunization requirements at www.victoryjunction.org and get any required immunizations well before the offiicial application process begins. Your children’s physician must sign the medical forms so make doctor’s appointments early also.
We also need volunteers to support our camp Family and friends, clinic staff and industry staff are welcome and encouraged to participate. It is a great experience! Please submit volunteer applications as soon as possible. You can find more details in the Fabry Family Weekend Camp section near the bottom of the home page and by reading the volunteer application requirements posted on the Victory Junction website at www.victoryjunction.org. Thank you!
Please share this information with your friends and family to support the Fabry community!