Thursday, April 17, 2014
Thursday, 21 March 2013 00:00

The Charles Kleinschmidt Fabry Family Weekend Camp

Written by 
Rate this item
(0 votes)

It's that time again! We are going to a very special place again in September 2014! Our camp dates are 26-28 September, 2014. Our annual family conference will be held on Friday before camp with travel and some conference events on Thursday afternoon and evening.

If you have at least one child with Fabry disease that is 6 to 16 years old, you are eligible to bring your entire immediate family to our family conference (Thursday evening and Friday day-time) and our annual Charles Kleinschmidt Fabry Family Weekend Camp (Friday at 5:30 PM to noon Sunday).

We provide transportation from around the country. Victory Junction provides lodging, meals, snacks, and loads of fun. Travel to North Carolina is on Thursday for most participants.

If you plan to submit an application to attend this year's camp, please email Jerry at This email address is being protected from spambots. You need JavaScript enabled to view it. as soon as possible to let him know for planning purposes. Please see more details about our camp in the Fabry Family Weekend Camp section near the bottom of the homepage.

Family applications may be submitted beginning in July. The application process has a quite a few steps and we need to buy airline tickets as early as possible after your application is approved. So, please start prepartion for your application early to ensure all application and medical documentation requirements can be completed by the submission date. It is best to review camp immunization requirements at www.victoryjunction.org and get any required immunizations well before the offiicial application process begins. Your children’s physician must sign the medical forms so make doctor’s appointments early also.

We also need volunteers to support our camp. Family and friends, clinic staff and industry staff are welcome and encouraged to apply. It is a great experience! Please submit volunteer applications as soon as possible. You can find more details in the Fabry Family Weekend Camp section near the bottom of the home page and by reading the volunteer application requirements posted on the Victory Junction website at www.victoryjunction.org. Thank you!

If you have questions, please contact Jerry at This email address is being protected from spambots. You need JavaScript enabled to view it. or 800-651-9131.

Please share this information with your friends and family! 

Last modified on Wednesday, 05 February 2014 06:18
Login to post comments