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Wednesday, 11 January 2012 18:16

Massachusetts General Hospital White Matter Study

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MGH White Matter Study for people with Fabry DIsease

Massachusetts General Hospital is conducting a study using copies of past and future MRI scans of the brain. They just need your consent to get copies of your brain MRIs. This study is very important to continue to understand how Fabry disease affects our health. 

Please participate in this study! Studies like this are so important to the Fabry community as a whole. See details below.

You can enroll in this study by phone. Please print the attachments below and call the study coordinator at 617-726-0580.

Research Study

Do you have Fabry disease?

Have you ever had a MRI scan of your brain?


If yes, you may be eligible to participate in a research study on people with Fabry disease.

  • Who? Adults and children with Fabry disease who have had a brain MRI or multiple brain MRIs
  • Why? To learn about the brains of people with Fabry disease by studying MRI images
  • How? To learn more about this study, call the study coordinator at Massechusetts General Hospital at 617-726-0580.
  • This study is voluntary. The study will use MRI images from scans you have had in the past or will have in the future as part of your care for Fabry disease or forother medical reasons.

    Funded by Genzyme Therapeutics to Katherine Sims, MD, Principal Investigator, Massachusetts General Hospital

Last modified on Wednesday, 27 June 2012 10:48
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