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Monday, 19 December 2011 17:11

How To Help The Fabry Disease Community

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Your support can give individuals with Fabry disease a chance to live significantly better and longer lives and can help future generations avoid many of the devastating consequences of Fabry disease. Thank you!
•  Make a donation to support the Fabry community.


•  Donate your used vehicle to the NFDF

•  Raise funds to support the Fabry community. If you want to raise money by participating in a walk, run, or bike event or by organizing a unique event of your choice, you can! 

START FUNDRAISING  through the NFDF's FirstGiving site. Build your own fundraising page. 

Current NFDF national campaign's that have templates you can use to build your own page are:

Work Up A Sweat For Someone Who Can't™ 

Kidney Beans for Kidney Health Chili Cook-Off  

“Life’s unfairness is not irrevocable; we can help balance the scales for others, if not always for ourselves.”  Hubert Humphrey

NFDF Founder's message:
As an individual with Fabry disease, the quote above from Hubert Humphrey is especially meaningful to me. Each of us can help to improve the lives of others by telling our stories, by participating in information gathering efforts, by completing thorough family trees, by participating in the Fabry Registry via participating healthcare professionals, by participating in clinical trials or by contributing to the greater good of the Fabry community in other ways. Improved understanding and management of Fabry disease cannot reverse much of the damage already imposed on many of us, but we all can help to prevent it from happening to those that come after us. We can take action for the benefit of many others if not always for the greatest benefit to ourselves.   
Thank you, Jerry Walter
Last modified on Friday, 20 July 2012 10:29
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