Sunday, April 20, 2014

Jerry's Fabry Disease Blog

Keeping the Fabry community informed

Jerry's Fabry Disease Blog

Jerry's Fabry Disease Blog was created to spread awareness about Fabry disease, a rare genetic disorder, and to share news and information about what is happening in the Fabry community. The blog is one component of the National Fabry Disease Foundation's social networking program.


When should children get treatment for Fabry Disease?

Jerry’s Fabry disease blog should probably be renamed Jerry’s Air Time. Here I am again on a flight from Boston to Raleigh-Durham anxious to get home after a long day. In the meantime I have a couple of hours to write. The topic for today is when to start treatment. Many parents want to know [...]

Written by: Jerry Walter Categories: Treatment