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About NFDF 
Staff (6)
Mr. Douglas Warnock
Mr. Douglas Warnock holds Bachelor and Master Degrees in Geoenvironmental Studies from Shippensburg University, PA; a Masters of Strategic Studies from the U.S. Army War College, Carlisle, PA; and is currently working on a doctorate degree at George Mason University, VA. He has held various positions with the U.S. Army in environmental management located at the Pentagon, Fort Detrick, MD, Aberdeen Proving Ground, MD and Letterkenny Army Depot, PA. Mr. Warnock and his wife reside in Chambersburg, PA.
Dr. Tracey Kasnow
Dr. Krasnow is in the unique position of being both and individual with Fabry disease and a physician. He completed his residency training in Pediatrics, Psychiatry, and Child Psychiatry in 2008.
Dr. Krasnow is now practicing medicine in Avon, CT where he lives with his wife and 5 cats. He has been receiving enzyme replacement therapy since August, 2003 and he says he feels great.
Ms. Elizabeth Gaffin
Ms. Elizabeth Gaffin is employed as an environmental law attorney for the Department of Homeland Security. Along with being a seasoned attorney in the federal government, Ms. Gaffin has personal experience with coping with a genetic disorder in her own family. She currently resides in Arlington VA with her family.
Ms. Sue Brown
Ms. Brown is a retired association executive with a long history of volunteer work in community organizations. She also brings first hand knowledge of being a female dealing with Fabry disease. She has been on Enzyme Replacement Therapy for several years and particpates regularly in helping others to cope with their disease. Ms. Brown lives in Columbia, MD with her husband Bob.
Mr. Derek Halberg
Mr. Derek Halberg holds a Bachelor of Science degree in Forestry from North Carolina State University and a Master of Forestry degree from Yale University. Since 2004, Mr. Halberg has worked for the Tar River Land Conservancy, a non-profit land trust based in Louisburg, NC, serving first as Director of Land Protection and currently as its Executive Director. The Tar River Land Conservancy works with rural landowners to protect forests, farmland, drinking water, and wildlife habitat in eight counties north of the Triangle using conservation easements. From 1996 to 2004, Mr. Halberg served in various civilian positions at the National Guard Bureau in Arlington, Virginia, managing the agency's natural resources program in support of Army National Guard installations across the country. Mr. Halberg and family currently reside in Wake Forest, NC. Mr. Halberg is current Vice Chair of the NFDF Board of Directors.
Mr. Jerry Walter
Jerry Walter is the Founder, President, CEO, and the first Chair of the NFDF Board of Directors. Jerry is pending a medical retirement from being a Colonel in the Army managing a multi-million dollar nationwide environmental management program. He now works part-time and volunteers for the NFDF. He has over 26 years of management experience with 23 years of active duty military service. His general management experience is supported by a strong background in financial management and strategic planning. Jerry has a Bachelor's degree in Environmental and Natural Resource Policy and a Master's degree in Administration. He is one of several family members with Fabry disease.
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Join the Fight
Join the fight against Fabry disease! Make your voice count to create positive change for people with Fabry disease and our families.
Founder's Corner
Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012. Founder and President, Jerry Walter
Visit Jerry's Blog Today!
Faces of Fabry
Locations of the Fabry Disease Population
Contact Information
National Fabry Disease Foundation
4301 Connecticut Ave. N.W.
Suite 404
Washington DC 20008
NFDF NC Office
1913 Village Crossing Drive
Chapel Hill, NC 27517