Monday, April 21, 2014

Mr. Douglas Warnock

Mr. Douglas Warnock holds Bachelor and Master Degrees in Geoenvironmental Studies from Shippensburg University, PA; a Masters of Strategic Studies from the U.S. Army War College, Carlisle, PA; and is currently working on a doctorate degree at George Mason University, VA. He has held various positions with the U.S. Army in environmental management located at the Pentagon, Fort Detrick, MD, Aberdeen Proving Ground, MD and Letterkenny Army Depot, PA. Mr. Warnock and his wife reside in Chambersburg, PA.

 

Dr. Tracey Kasnow

Dr. Krasnow is in the unique position of being both and individual with Fabry disease and a physician.  He completed his residency training in Pediatrics, Psychiatry, and Child Psychiatry in 2008.

Dr. Krasnow is now practicing medicine in  Avon, CT where he lives with his wife and 5 cats.  He has been receiving enzyme replacement therapy since August, 2003 and he says he feels great. 

Ms. Elizabeth Gaffin

Ms. Elizabeth Gaffin is employed as an environmental law attorney for the Department of Homeland Security. Along with being a seasoned attorney in the federal government, Ms. Gaffin has personal experience with coping with a genetic disorder in her own family. She currently resides in Arlington VA with her family.

Ms. Sue Brown

Ms. Brown is a retired association executive with a long history of volunteer work in community organizations. She also brings first hand knowledge of  being a female dealing with Fabry disease. She has been on Enzyme Replacement Therapy for several years and particpates regularly in helping others to cope with their disease. Ms. Brown lives in Columbia, MD with her husband Bob.

Mr. Derek Halberg

Mr. Derek Halberg holds a Bachelor of Science degree in Forestry from North Carolina State University and a Master of Forestry degree from Yale University. Since 2004, Mr. Halberg has worked for the Tar River Land Conservancy, a non-profit land trust based in Louisburg, NC, serving first as Director of Land Protection and currently as its Executive Director. The Tar River Land Conservancy works with rural landowners to protect forests, farmland, drinking water, and wildlife habitat in eight counties north of the Triangle using conservation easements. From 1996 to 2004, Mr. Halberg served in various civilian positions at the National Guard Bureau in Arlington, Virginia, managing the agency's natural resources program in support of Army National Guard installations across the country. Mr. Halberg and family currently reside in Wake Forest, NC.  Mr. Halberg is current Vice Chair of the NFDF Board of Directors. 

Mr. Jerry Walter

Jerry Walter is the Founder, President, CEO, and the first Chair of the NFDF Board of Directors. Jerry is pending a medical retirement from being a Colonel in the Army managing a multi-million dollar nationwide environmental management program. He now works part-time and volunteers for the NFDF. He has over 26 years of management experience with 23 years of active duty military service. His general management experience is supported by a strong background in financial management and strategic planning. Jerry has a Bachelor's degree in Environmental and Natural Resource Policy and a Master's degree in Administration. He is one of several family members with Fabry disease. 

 

According to our by-laws, the NFDF may have between five and eleven members on the Board of Directors at any time including the President/Chief Executive Officer (CEO). We currently have 6 directors, identified below, with a variety of skills and experience and most importantly generous enough to volunteer their time, energy and expertise to this worthy cause. The Officers of the NFDF are the Chair, Vice Chair, Secretary, Treasurer and President. Being a new organization, the first member serving as the NFDF Chair is the President/CEO. After his initial term, the Chair as well as the other officers will be elected and serve according to the NFDF by-laws.

We are always looking for individuals with needed skill sets and experience to serve on the NFDF Board of Directors. If you have an education and/or experience in healthcare, law, finance, management, public/media relations, marketing, fundraising, education, or other relevant occupations; and you have an interest in Fabry disease support, please send us a statement of your interest and a resume. We are currently evaluating candidates to serve beginning in January 2007. Unfortunately, we cannot accept applications from any individual who serves on the Board of Directors of another nonprofit organization with a similar mission, that serves similar constituencies, or that competes for the same funding sources as the NFDF.

Our Board of Directors

Chair:                     Mr. Jerry Walter
Vice Chair:            Mr. Derek Halberg
Treasurer:             Ms. Sue Brown
Secretary:              Ms. Elizabeth Gaffin
President/CEO:    Mr. Jerry Walter
Member:                Dr. Tracey Krasnow
Member:                Mr. Doug Warnock
Member:                Vacant
Member:                Vacant
Member:                Vacant
Member:                Vacant
Member:                Vacant
Member:                Vacant

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Founder's Corner

Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012.  Founder and President, Jerry Walter

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