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About National Fabry Disease Foundation

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 The National Fabry Disease Foundation (NFDF) is an organization dedicated to supporting the Fabry disease community. Our five primary functions are assisting with Fabry disease education, facilitating Fabry disease identification to improve Fabry disease recognition and diagnosis, providing various forms of assistance to individuals with Fabry disease, supporting Fabry disease research and promoting advocacy for Fabry disease issues.


The National Fabry Disease Foundation (NFDF) is a non-profit public charity organization under section 501 (c) (3) of the Internal Revenue Service Code.
The NFDF works to increase the level of effort devoted to assisting and supporting people with Fabry disease. While increased effort is required in each of the NFDF's five primary functions, Fabry disease education and Fabry disease identification are our two highest priorities at this time. It is critically important to educate healthcare providers, families and others to recognize this progressive, destructive and often life-threatening disease earlier in the disease process.

Subsequently, through both improved Fabry disease education and thorough family tree analyses, we must find the thousands of individuals in the U.S. who are living with Fabry disease symptoms but are unaware they have Fabry disease. Once identified and diagnosed, individuals with Fabry disease can be empowered to make informed disease management and treatment decisions.
 

With currently available Fabry disease management and Fabry disease treatment options, and with continued research to discover improved treatment for Fabry disease, many individuals with Fabry disease now have an opportunity to live significantly better and longer lives.

Last modified on Thursday, 12 April 2012 12:05
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  • As a IRS 501(c)(3) non-profit support organization we rely on donations from organizations and individuals to provide meaningful support and assistance programs to people/families with Fabry disease. Please give generously!  

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  • Thank you to our corporate and foundation sponsors as well as our many individual donors. Contributions of all sizes add up to make a tremendous difference. Read more about ways to support people with Fabry disease.

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Founder's Corner

Greetings everyone! We've come a long way and I'd like to share a few things with you from time to time. Thanks for listening (reading) and for your input and participation. I remain very fortunate and proud to serve the Fabry community. June 2012.  Founder and President, Jerry Walter

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